Members of the Executive Committee of the International SCI Standards and Data Sets committees (ECSCI) have worked with the National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health (NIH), Common Data Element (CDE) Project to integrate the International SCI Data Sets with the other NINDS CDE resources. This effort has included the development of standard variable names for the data elements in the International SCI Data Sets and suggested database structures (i.e., relational data tables for the data sets). These recommended variable names and database structures are intended for free use by clinicians and researchers, so that they can more easily share and combine clinical/research data.
October, 2016 – The International Spinal Cord Injury Core Data Set (version 2.0) is up for review. Please send all comments and suggestions to the chairs of the committee Michael Devivo firstname.lastname@example.org and Fin Biering-Sørensen Fin.Biering-Soerensen@regionh.dk by November 30, 2016.
The International Data Sets are available, organized by working group, at the NINDS Common Data Elements website, on the Data Standards tab.