Responsible for overseeing the development of any new standards documents related to SCI. Responsible for continuous review and improvement of the existing ASIA documents on neurological and autonomic standards. Responsible for the development of the online training program for ASIA standards. Responsible for the development and oversight of the International Data Sets project.
International Data Sets
Members of the Executive Committee of the International SCI Standards and Data Sets committees (ECSCI) has worked with the National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health (NIH), Common Data Element (CDE) Project to integrate the International SCI Data Sets with the other NINDS CDE resources. This effort has included the development of standard variable names for the data elements in the International SCI Data Sets and suggested database structures (i.e., relational data tables for the data sets). These recommended variable names and database structures are intended for free use by clinicians and researchers, so that they can more easily share and combine clinical/research data.
September 8, 2015 – The International Spinal Cord Injury Bowel Function Basic Data Set (version 2.0) is up for review. Please send all comments and suggestions to the chair of the working group, Klaus Krogh: firstname.lastname@example.org, within the next 4 weeks.
The International Data Sets are available, organized by working group, at the NINDS Common Data Elements website, on the Data Standards tab.
Chair: Ruediger Rupp, PhD
Heidelberg University Hospital – Spinal Cord Injury Center – Heidelberg, Germany
Co Vice Chair: Daniel Graves, PhD
Rehab Institute, Univ. of Louisville
Co Vice Chair: John Steeves, PhD
UBC and Vancouver General Hospital
Board Liaison: Steven Kirshblum, MD
Kessler Institute for Rehabilitation