International Data Sets

www.CommonDataElements.ninds.nih.gov

The Executive Committee of the International SCI Standards and Data Sets committees (ECSCI) has worked with the National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health (NIH), Common Data Element (CDE) Project to integrate the International SCI Data Sets with the other NINDS CDE resources. This effort has included the development of standard variable names for the data elements in the International SCI Data Sets and suggested database structures (i.e., relational data tables for the data sets). These recommended variable names and database structures are intended for free use by clinicians and researchers, so that they can more easily share and combine clinical/research data. These materials as well as similar data standards for other neurological disorders are also available through the NINDS CDE Project Web site at www.CommonDataElements.ninds.nih.gov. A manuscript describing the collaborative work of the ECSCI and the NINDS CDE Team is currently in press and will be referenced on this site upon publication.

2009-11-16: International SCI Bowel Function Extended Data Set 1.0 [PDF]

2009-11-15: International SCI Bowel Function Basic Data Set incl. Training Cases 1.1 [PDF]

2009-10-12: International SCI Pain Basic Data Set incl. Training Cases 1.1 [PDF]

2009-09-26: International SCI Cardiovascular Function Basic Data Set (version 1.0) [PDF]

2009-09-03: The International Spinal Cord Injury Basic Endocrine and Metabolic Data Set [PDF] is now for review.  Any comments or suggestions to this data set shall be send to the chair of the committee working on this data set: William Bauman: william.bauman@va.gov

2009-05-28: Quality of Life Basic Data Set [PDF]

2009-05-20: The International SCI Pulmonary Function Basic Data Set [PDF] is now for review.  Any comments or suggestions to this data set shall be send to the chair of the committee working on this data set: Greg Schilero: greg.schilero@va.gov

2009-02-06: International SCI Female Sexual and Reproductive Function Basic Data Set (version 1.0) [PDF]

2009-02-06: International SCI Male Sexual Function Basic Data Set (version 1.0) [PDF]

2008-11-10: Urinary Tract Imaging Basic Data Set - Comments [PDF]

2008-03-04: Cases For Training Of Urodynamic Basic SCI Data Set [PDF]

2007-11-12: Cases For The Lower Urinary Tract Function Basic SCI Data Set [PDF]

2006-06-07: Cases For Core Data Set Training (final) [PDF]